Dementia Adventure Forms Special Interest Group

Dementia Adventure Forms Special Interest Group


Dementia Adventure has invited a select group of people living with dementia and their partners to form a new special interest group for 'outdoor activity', with the specific purpose to inform and guide the organisation's work. At their first meeting in February, the group reviewed Dementia Adventure's 2020 business plan, to ensure that the lived experience of people with dementia continues to be at the forefront of its decision making as the organisation plans to reach and benefit more people with its work.

 

The members of the group come from a variety of different backgrounds and represent various dementia groups from around the UK. They are all inspiring people who are changing the way people view dementia whether that be through public speaking, training, or influencing policy. The group was selected in a variety of ways. Many of the members have long-standing connections with Dementia Adventure, either having been part of its holidays, training or research related projects in the past.  All of them share a passion and interest in the benefits of outdoor activity and some individuals were invited due to the nature of the work they do within the sector. All members of the group have signed a volunteer charter which was developed specifically for individuals in the group for clarity about their role with Dementia Adventure.

 

Dementia Adventure CEO, Neil Mapes says of the group, "We have been thinking about starting a group like this for some time and are really pleased we have dedicated the resources to establishing this group.  We are also deeply grateful to the members who are individually and collectively amazing and inspiring and working with us as equal partners in shaping better lives for the beneficiaries of our work.  The advocacy adage 'Nothing about us without us' is an important message to fully embrace and I would suggest many other organisations would benefit by including and involving people with dementia in their strategic planning and delivery."